Census Bureau Public Affairs specialist Robert Bernstein was unable to find the language quoted by "Missing" in the 2000 "Facts for Features" edition, though the page contains a link to a press release that is no longer available. Bernstein, who has been with the Census Bureau for 14 years, said that he doesn't believe there is any new spin on earnings information. "What we try to do is present data in a positive light about different groups. It was a fact that that ratio at the time did represent an all-time high." Bernstein also noted that the "all-time high" language would have come straight from the news release about the Bureau's annual Income and Poverty Report. And though he doesn't think that there's been a noticeable upturn in the language of the Bureau, Bernstein did confirm one of the fears of the NCRW. "The point of 'Facts for Features' is to give information to reporters, allowing them to do a particular feature story [pegged to] a particular holiday or observance," said Bernstein. "They're trying to do upbeat stories."
When it comes to issues of women's health, agencies like the CDC, FDA and the Health and Human Services Administration don't fare much better than the DOL or the Census Bureau with the NCRW researchers. One of their chief battle cries -- and arguments about why a study like "Missing" can be valuable in the future -- is over the changed language on a National Cancer Institute Web site. "Missing" cites the case of the 1997 New England Journal of Medicine study that conclusively proved that there was no link between breast cancer and abortion, a favorite claim of anti-abortion advocates. The NCI had a fact sheet with reference to the study posted on its Web site until November 2002, when the Web site was changed to indicate that studies about the link had been "inconclusive," an assertion that lent implied credence to the claims of the anti-abortion advocates. According to "Missing," members of Congress forced the convention of a panel of experts who reinforced the New England Journal's findings, and the NCI again posted information that there is no link between breast cancer and abortion.
Over at the Centers for Disease Control, the NCRW researchers claim, posted fact sheets were revised to suggest studies on the effectiveness of using condoms to prevent the spread of HIV and other STDs were "inconclusive." Instead, the revised fact sheet focused on abstinence -- a favorite of the family values crowd -- as the only effective path to sexual health. As was reported at the time, the CDC also removed an online guide to proper condom use (replacing it later with a revised edition) as well as a list of successful sex education programs and studies that showed no rise in sexual activity among teens taught about condoms. "These are debates that scientific research has closed," said Riche. "The people who provide the information are now reopening those debates, taking away the scientific certainty. It's more subtle than putting out wrong information or simply removing all the information -- and, frankly, more effective."
According to the researchers behind "Missing," the pressure of right-wing ideology has also led scientists to stop using words like "gay," "sex worker," and "transgender" in their grant applications. This comes in the wake of the Traditional Values Coalition's very long and damning list of 150 researchers and 200 grants in the field of high-risk sexual behavior. Then there's the case of the morning-after pill, which has yet to appear as an over-the-counter medication, despite the two scientific advisory committees that urged the FDA to make it one. According to "Missing," it was pressure from conservative groups that led FDA commissioner Mark McClellan to postpone his expected February 2004 decision on the matter by 90 days.
"Missing" doesn't concern itself only with absent online information. It also lists some of the actual governmental bodies that have disappeared or been threatened during the Bush administration. In 2001, George Bush disbanded the President's Interagency Council on Women, a group appointed in 1995 by Bill Clinton to implement strategies developed at the U.N. Fourth World Conference on Women in Beijing, as part of the U.N. Platform for Action. The council was chaired by Secretary of Health and Human Services Donna Shalala and then by Secretary of State Madeleine Albright. "One of the things the office did was make sure the president's policies reflected women's issues," said Garza. "That office is gone. It was one of the first things that was done away with under this administration."
Reversals are possible. When the Department of Health and Human Services' Agency for Healthcare Research and Quality changed the wording in a mandated report on the disparities in healthcare along racial and socioeconomic lines, suggesting that "disparities" in the diagnosing and treatment of HIV, diabetes and hypertension among women of color were actually "differences," people noticed and complained. A spin like that could be very detrimental to attitudes and eventual action on behalf of women of color who are at a disadvantage. The document was restored to its original wording in February. "Missing" cites this example, and hopes that by getting people to pay attention to so many others, information will be restored.
"In my experience, I would say we are probably just seeing the tip of the iceberg with this report," said Riche. "If we know about all these examples, that means there are many, many more." To that end, the NCRW is establishing a Misinformation Clearinghouse Web site through which people can submit examples of information that is no longer available to them. The Clearinghouse will also collect and publish a list of sources for dependable information.