Breast cancer has gained political cachet as well, and although that certainly has benefits in terms of boosting funding, it can distort decision making over medical issues. If it's true that just about every woman (I mean voter) knows someone with breast cancer and many fear getting it themselves, it's easy to understand how the disease became a bipartisan issue for legislators and an opportunity for politicians to garner the female vote. When an NIH consensus panel concluded that there wasn't enough evidence that mammography for women in their 40s saves lives and advised women to come to their own decisions about when to get screened (a less clear-cut but, some say, responsible recommendation given the evidence), there was an uproar among politicians.
In her essay, Carol Weisman, professor of health management and policy at the University of Michigan School of Public Health, writes, "In statements for the Congressional Record [Sen. Arlen] Specter made it clear that he urgently wanted a recommendation endorsing screening for all women in their forties, and he was in a position to pressure NCI [National Cancer Institute] for this result because of his power to endorse or oppose budget increases for the agency" (via his Subcommittee on Labor, Health and Human Services and Education Appropriations). A few months later, the NCI recommended screening every one to two years for women in their 40s. Scientific organizations that determine policy, writes Weisman, were pressured by politics to change positions that were initially based purely on scientific research.
The book's authors are equally indignant on issues like the effects of poverty and of being uninsured on how women are treated for breast cancer, how the paternalistic field of medicine influences personal decisions such as getting breast-conserving or reconstructive surgery and how the breast implant industry and cosmetic surgeons, by promoting implants, are responsible, one author contends, for making women feel that they're disfigured after mastectomy. Though her arguments are interesting, placing the blame on others seems to ignore the possibility that a person might naturally feel disfigured after a body part is removed.
The most compelling essay, and the one that may personally resonate with readers, discusses how women with breast cancer are forced, as never before, to confront and struggle with cultural values and sexism. It describes three women's struggles to reject society's view that women without breasts are less feminine and less worthwhile than those with (preferably large) breasts.
According to one study cited in the essay, about one-quarter of women with breast cancer rejected equating breasts with femininity and self-worth, even though they found it very difficult. Bravo for them, but what about the 75 percent who didn't? They must add diminished self-esteem to the list of pain and insults they've endured since being diagnosed with breast cancer. Women also have to contend with other unhelpful societal notions: that women should not burden others with how truly difficult it is to deal with breast cancer and, as a corollary, that being a warrior-survivor, an optimist, is the only appropriate way to cope with the disease.
The book comes to life in the few moments when the authors focus on individual women and their plights, but they generally fall short of touching the emotional nerve that might incite people to take the actions they're calling for. And by tackling all the wrongs of the healthcare industry, the breast cancer industry and general feminist issues, the book may leave some readers feeling more daunted then empowered.
That doesn't mean it's not an important read for women and advocates. It's just depressing compared with all the upbeat cancer-breakthrough books and reports we're used to reading -- another gripe of the authors, in fact. "Magazines emphasize positive thinking and optimism as more appropriate responses to illness than are complaint, anger and fear," declares one essay. These authors, on the other hand, want you to get obstreperous -- and mad as hell.